Daniel Coleman of Danny Go! announced the death of his son Isaac, 14, on Friday.
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The popular children's entertainer said "the pain in my heart is far more than I can process."
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Coleman frequently shared updates about Isaac, who was born with Fanconi anemia, a rare inherited disorder.
Daniel Coleman, star of the popularchildren's seriesDanny Go!, announced the death of his 14-year-old son, Isaac, following a battle with stage 3 mouth cancer.
"Isaac Daniel Coleman, 10/3/11 - 5/21/26," Coleman shared viaInstagramon Friday.
"Oh my sweet boy. There’s so much I want to say, but I don’t know how yet. I already miss you so much, and the pain in my heart is far more than I can process," Coleman wrote.
Coleman shared two photos of Issac in his post, one closeup of the young boy's face and another of him and his dad laughing while embracing.
TheDanny Go!star continued, "But looking through thousands of pictures and videos this past week, I’m also filled with tremendous pride. Your 14 years were full of so many challenges, but you met them all with such grit … and you somehow kept your trademark joy in spite of it all. You truly had a spark like no other, Isaac! Remembering how loved you were and how full of life your time here was gives me great comfort."
"Being your dad was the honor of a lifetime," Coleman concluded. "I’m so proud of you and I love you forever. Rest peacefully, son."
Entertainment Weeklyhas reached out to Coleman's rep for further comment.
Isaac was born withFanconi anemia, which is a "rare inherited condition that affects your bone marrow and many other parts of your body," according to theCleveland Clinic. Coleman and his wife, Mindy, who have another son, 10-year-old Levi, reportedly knew cancer would be a part of Isaac's life.
In December, Coleman shared Isaac's cancer diagnosis with his followers on social media.
"TBH, we always knew this day was coming, as it’s a near certainty w/Fanconi anemia. But it’s definitely hitting a little earlier than we hoped and is still just such a shocking thing to hear about your child, even if you’ve braced for it for years," Coleman wrote.
Isaacunderwent extensive surgeryin January when the family learned the cancer had spread "further than the scans indicated."
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"They had to remove quite a few teeth and a pretty significant amount of mouth tissue. They also had to take a large graft from his leg to repair the soft tissue in his mouth," Coleman shared. "That was probably the most shocking for us, and will likely be the hardest for Isaac to adjust to in the next several weeks."
Coleman added that doctors also discovered "some brain spots forming that indicate potential degenerative nerve issues."
"It coincides with some mobility issues we’ve been noticing lately, so that’s another can of worms that could have a pretty big impact on him soon. But for now, we’re taking it a step at a time and addressing the cancer aggressively," he wrote.
In February, Coleman shared another update on Isaac's recovery and prognosis.
"On the cancer front, we’ve learned a bit more and it hasn’t been good news. He’s officially stage 3, although the docs said he’s right on the edge of stage 4 because of the speed and aggression of the spread. So even though the visible cancer has been removed, there’s a very high chance that it’s still present microscopically & we’ll have a tough decision to make soon," wrote Coleman.
Colemn said Isaac's treatment options were more limited than in typical pediatric cancer cases due to his son's Fanconi anemia. But the family continued having Isaac treated with low-dose targeted radiation therapy before bringing in hospice care in April.
"We are just doing our best to make each day as enjoyable and restful as possible for him," Colemanwrote at the time. "Mindy and I are heartbroken watching him decline, knowing how frustrating and scary this must be for him. But we’re trying to hold it all together & keep soaking up the time we still have with our boy."
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Coleman co-created the live-action educational kid seriesDanny Go!with his best friends in 2019 — in partto use the platform to raise awarenessabout Isaac's condition and financially care for him amid his health battle. Coleman frequently brings up the bone marrow registry and organ donation, as the show aims to inspire children ages 3 to 7 to learn through music and exercise.
After amassing more than 4.5 million subscribers and racking up almost 5 billion lifetime views on YouTube,Danny Go!released five new off-the-couch adventureson Netflix in April.
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